Scoliosis Stories

Written by a Teen for Teens

Scoliosis Stories


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Joined Feb 17 2010
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FEMALE
San Diego, CA
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I am the creator of this website.  If you have any questions about scoliosis, feel free to ask me!  I am a 17 year old girl who has scoliosis.  My spine was curved 36 degrees before I began wearing my Boston brace.  After wearing my brace for four years, my spine is now 17 degrees.  I do not have to wear my brace during the day anymore because my bones have matured.  My doctor told me that I am not required to wear my brace at night anymore but I am reluctant to stop wearing it.  It has helped my back so much that I have decided to keep wearing it every other night.  If you want to read my full story about my scoliosis experience, click on the "My Story" tab.  I hope you like my website! 

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60 Comments

Reply Christie Marie
7:54 AM on September 18, 2014 
uh, hey, my angles are 23 and 3.... the lower one is the 3... oh, what was that type of scoliosis that has an "adolescent" word again?
Reply Maddy
5:44 AM on September 30, 2013 
apparently for kids around the age of 12-14 the degree your spine must be to have surgery is around 40 and because im am almost 13 and i havent had any major growth spirts if my spine gets any worse i may have to probably have surgery (my spine is 37 degrees) so if it gets any worse i will have to have surgery! if i dont wear the brace ALL the time i will maybe have to have surgery. i am really worried about wearing the brace but it is the only way to avoid having spinal surgery. please tell me how to deal with this situation i am in. :)
Reply Maddy
5:33 AM on September 30, 2013 
im getting a back brace in 8 days and i was wondering if you could give me some advice?
i would like it if you replied before the 8th of october because that is the day im getting it. im in year 7 and im scared that everyone at school is going to see my back brace. will i be able to wear tight - ish clothes on the weekends. does it give you a rash? please help
Reply Lucast13
11:26 PM on June 12, 2013 
I have tried to put photos on here, but there is not an add photo button.
Reply Lucast13
9:50 PM on May 20, 2013 
Thank you! I went to the doctor today and they told me that I would have to have surgery. My curvature is 59 on top and 48 on bottom, I have a s curve. I have to go back on June 6th to meet with the surgeon.
Reply Susu_qz
6:36 AM on May 10, 2013 
I've sent you my story, I hope you like it !
Reply Susu_qz
11:42 AM on April 25, 2013 
How can I post my own story, and thank you ,, i really liked you website!
Reply Carrie
10:42 PM on January 16, 2013 
Wow, it has been a long time. I hadn't realized. When you started this website, I was still in high school. Crazy how time flies. And no problem for sticking around! Since I haven't had many appointments or done much of anything for my back since at least my 2 year post-op mark (2 years ago!), I don't give my back much thought. Keeping up with this website is the main way I remind myself all that my back has taught me. If I stopped talking to and trying to give guidance to others, I'd probably never think about my back. I've gotten so used to the metal, I forget it's there. I also commend you. It's one thing to keep up with the activity of a site, but it's entirely another to run a site, especially for 3 years. I'm impressed that you've stuck with this. Most people give up their websites; it makes me sad.
Reply Maya337
9:01 PM on January 13, 2013 
Thank you
I just got my brace 3 months ago and I am just getting used to it. It feels very Comfortable when sleeping if without a pillow but do u have any tips for feeling uncomfortable during the day?
Reply Lyra
6:08 AM on January 13, 2013 
Thank you for replying, I hope that the brace really does a permanent job. Hearing that your back is so much better and that you don't get any pain is a relief in a way, and gives me hope for myself and other people with scoliosis. I know how hard it is with scoliosis so I'm really happy for you, I hope to be in the same condition as you soon. Thank you once again. :) x
Reply Karin
7:04 AM on January 6, 2013 
HAPPY NEW YEAR
Reply Lyra
4:32 PM on January 4, 2013 
I'm so happy for you as scoliosis isn't easy to live with. I am also a 15 year old girl with scoliosis. I've had it for five years but have only knew for 4 years. I figured out that my curve is very small, 17 degrees but enough to cause a lot of pain and discomfort. Throughout that time, I was not mentored properly and advised in the correct way in order to help me reduce pain and prevent my scoliosis from getting worse. Although the doctors did not advice me in the correct way, I went swimming on a regular basis which helped strengthen my back muscle and in turn my posture. Now I wear a back brace and have been for a few months. I feel that my pain has completely gone since I've been wearing it but worry that once I take it off permanently it will continue to hurt. Apart from that concern, I am very happy with the brace as it also shows me the correct posture and standing position. I will continue to wear it for about a year and a half. I also do yoga for scoliosis which I have only been doing for a month, I don't see any difference in me since doing it but hope to see a difference in the future. This month I will also begin Physiotherapy for the first time ever! I am very happy with everything at the moment and hope that I continue to be. I want to ask you, considering the brace helped you, do you think you will have a lot of pain in the future? I'm worried that I will constantly have pain in the future despite the early actions that I have taken to manage my scoliosis. And what can you do to prevent scoliosis from worsening? Thank you for your time! :)
Reply Carrie
4:23 PM on January 2, 2013 
Wow, that's awesome. Congratulations. I must admit, I'm a bit jealous. Just be careful though. Keep an eye on your back because after my doctor said I was done and could stop wearing it was when my back got worse. Although, my back was a lot worse than yours. Not another appointment for 5 years? I wish I had that. I have another one year from now. Again, congrats! You're definitely an inspiration!
Reply jeneco
2:52 PM on December 30, 2012 
THANKS SO MUCH!
Reply Karin
11:32 AM on December 29, 2012 
Thanks for the info and I'll work on my story don't worry I just wrote it quickly I'll take some more time to write it :)
Reply Karin
4:53 AM on December 22, 2012 
Oh that's great, and YES I do like the website, so how long have you been wearing your brace when you first got it (I read your story) I'm wondering, because today is my second day with my brace. :) thanks for making this awesome website :)
Reply Allegra
4:56 AM on December 14, 2012 
Thanks! I'm trying to stay strong. My parents usually freak out more than I do (like when they foud out I was flat footed. I said okay and they were flipping out) again, we're hoping for the best :)
Reply xo_morgan_xo
10:22 PM on November 29, 2012 
i love how you are thanking us for the views when really we should be thanking you for the support :)

Thank you
Reply Chrissyo
10:45 PM on November 22, 2012 
Thanks! I'm hoping for the best :)
Reply GALINA
2:09 AM on June 28, 2012 
You're welcome and sure that works!

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Let me know your story. Tell me about your curve, your treatment, and how this condition affects your everyday life. Maybe I will post your story too! Please do not include your real name or any other names.  If you have a brace that looks different than mine feel free to email a photo to me.  Please do not send a photo with your face.

Question of the Week

Every week there is a "Question of the Week".  This week's question is, "Has your scoliosis taught you any life lessons that you either didn't know before or otherwise didn't know the true meaning of until now?"  Write in by either using the "Contact Us", or send me an email at [email protected].  If you write in, I might post your story on my website! 

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