Scoliosis Stories

Written by a Teen for Teens

Carrie


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Joined Apr 8 2010
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FEMALE
25 years old
Los Angeles, CA
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About Me

(Edited: June 2013)


Hi. I'm Carrie and am 21 years old.


My really long and in depth story can be found under the "your stories" tab at the top, but long story short: I discovered I had scoliosis when I was 13. My thoracic (upper) curve was 45 degrees and my lumbar (lower) curve was 35 degrees. I chose to wear a brace, even though my doctor told me that I would still have a 50/50 chance of needing surgery after I was done with the brace. I wore it for 2 1/2 years and was supposed to have it on for at least 20 hours a day. After the first 1 1/2 years, I outgrew my first brace, so I got another one. When I was done growing, I got to stop wearing my brace, but six months later, I had to get surgery because my back had gotten much worse. I ended up getting surgery just on the top curve, since it was the worst and because my doctor told me that I would have more flexibility in the end. When I got surgery on the top, the bottom curve would correct itself some as well. I got surgery late December 2008, making my curves go from at least 60 and 50 degrees to 46 and 37. If I had gotten surgery on my entire back, my curves would be much less, probably in the 10s and 20s degree range. At the one year post-operation mark, my doctor told me I was allowed to do anything I wanted, except for bungee jump, skydive, and tumble. Those I'll never be able to do, but I feel fine and am getting back into shape, since I can't do tumbling anymore. I've found that yoga doesn't work at all for people with metal rods in their backs, well not the one class I went to, but I run and lift weights. I have minimal pain on the few occasions that I do get it, which I'm very thankful for since I've dealt with severe pain from my scoliosis since I was 12. I've also gotten pretty much all of my original flexibility back. I had a post-op appointment at the 2 and 3 year marks as well, and now I only have one more appointment, which will be in Dec. 2013 at the 5 year mark.


Don't hesitate to ask me anything!


-Carrie

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17 Comments

Reply Maddy
7:37 PM on October 5, 2013 
does your back still hurt after almost 5 years after surgery?
and this may sound like a bit of a silly question but if you felt your back can you feel the rods?
Reply april
4:57 PM on June 5, 2013 
Hey did u have any problems after surgery?
Reply Scoliosis Stories
6:05 PM on January 12, 2013 
Yah, I will definitely keep an eye on my back and watch it. Thanks for all your support for now going on three years. Wow, that's pretty crazy! It feels like I just started this website but it has actually been a long time since then. You were one of my first members and it's really awesome that you have stuck around and supported me and my website.
Reply Scoliosis Stories
3:38 PM on December 28, 2012 
Hi Carrie! I just wanted to update you on my scoliosis. My doctor told me that I am done growing and that I don't have to wear my brace anymore. I am apprehensive to stop wearing my brace so for now, I am wearing it every other night. I am still at 17 degrees. I don't need another appointment for 5 years or so. It is pretty exciting that my brace worked and I don't need surgery. It's a great feeling and I just wanted to let you know :))
Reply CarmellaC
5:40 PM on September 8, 2012 
THANK YOU! I am highly encouraged and so grateful to you for your sharing your experience with a saliva test. I will absolutely let you know what I find out! :-)
Sincerely,
Carmella
Reply WhittneeH
11:53 PM on June 24, 2012 
Thank you for what you said on my page. I will continue dancing I have worked too hard for a doctor to tell me to stop now. I just hope flexibility doesn't decrease too much if do end up having to get the surgery, but that's beside the point. Thank you!
Reply Scoliosis Stories
12:21 PM on April 14, 2012 
Well whatever you choose to do, I am sure you will do an amazing job!
Reply Scoliosis Stories
12:43 AM on April 2, 2012 
I initially had a 36 degree curve before my brace. After wearing my brace for about a year or two, I had a 17 degree curve. The 17 degree curve was measured when I was out of my brace. The last time I went to the my back doctor I still had a 17 degree curve (again measured out of my brace). I have worn my brace for about three years now and I am still at 17 degrees. The brace showed me how to stand normally. I always stood off center and to the right because I never knew what center was. I now know how to stand and this is what probably has helped my curve so much. I am really into wearing my brace for as long as possible just because of this. I need that reminder of what is center and what is not. I am slightly afraid to stop wearing my brace to be honest for this reason. My doctor told me too that the brace was only suppose to stop curvature. I was really surprised on how much my brace has helped me. It truly saved me from having surgery.

Anyway, I think that if you do go into a profession with scoliosis, you would be really great! You are such a big help on my website and you are amazing with the advice you give.
Reply Scoliosis Stories
9:38 PM on March 29, 2012 
Hi Carrie,

I just wanted to say thank you so much for continually answering questions and providing such great support to everyone on my website! I really appreciated everything that you do!
Reply Scoliosis Stories
11:59 AM on June 15, 2010 
I forwarded you some more questions. Could you answer them? Thanks so much!
Reply Scoliosis Stories
12:41 PM on June 12, 2010 
I have not recieved a reply from that person either. I will resend your message through my email to her just to make sure she got the info. Thanks for helping!
Reply Scoliosis Stories
5:16 PM on June 8, 2010 
I forwarded an email to you from someone who had Scoliosis surgery questions. I was wondering if you could answer them. So check you email.
Reply Scoliosis Stories
10:14 PM on May 26, 2010 
THANK YOU SO MUCH! That is such an inspirational story and it really spoke to me. I sent you an email responding back to your story. Thank you so much for putting the time and effort into writing that story. I know it must of taken you a long time. Thanks again!
Reply Scoliosis Stories
6:57 PM on April 19, 2010 
That is cool! I was thinking about how this one person named Carrie on Yahoo Answers was always answering so many questions. Then I realized it was you.
Reply Scoliosis Stories
10:32 AM on April 19, 2010 
Hey I just realized that there is a person on Yahoo Answers with the username Carrie. I get a lot of people to visit my website from putting my website address on Yahoo Answers. Is that you?
Reply Scoliosis Stories
12:32 AM on April 9, 2010 
Thank you so much! I started this website for my Girl Scout Silver Award but now it is more of a hobby. I am so happy to be able to talk to other people with Scoliosis. It makes me feel good knowing that I am helping other people. Your photos and story are a big contribution to my website! Thanks again.
Reply Scoliosis Stories
8:04 PM on April 8, 2010 
Thank you for becoming a member on my website! I was wondering if I could put your story on my website. I will not display your name or email address on it. Let me know if that is ok! Also, let me know if there is anything that I should add to my website. Thanks again!

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